A touching video has emerged from the United States of a young boy sharing a hopeful message about living with Schwartz-Jampel Syndrome (SJS).
In the clip, which was filmed in Pennsylvania, nine-year-old Giovanni holds up signs explaining that there is more to him than his rare condition.
"I like cats and dogs," one of the signs reads. "I want to be a vet one day," he writes on another.
And then little Giovanni signs off saying "I am Giovanni, not SJS" and blows a triumphant kiss for the camera.
